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Goingbeyond

E-mail: carlb3z@hotmail.com

Published in Circle Of Friends magazine October 2010

www.cysticfibrosis.ca/assets/files/pdf/CircleOfFriends_Fall2010E.pdf

 

Guestbook

Feel free to sign the guest book, I appreciate hearing comments of what people have to say.

 

Thanks for all your posts so far guys its great to receive inspiration and know that im helping inspire people.

Guestbook

Date: 20/10/2014

By: Smithd683

Subject: John

Hi there! Someone in my Myspace group shared this site with us so I came to give it a appear. Im definitely loving the details. Im bookmarking and will likely be tweeting this to my followers! Outstanding blog and great style and style. acdefefgeggcffdk

Date: 25/01/2016

By: crystal

Subject: Re: John

thank you for sharing the site.

Date: 09/07/2014

By: Sister

Subject: Birthday

Another year come and gone , you'd be 30 today, how I wish you were here celebrating with me, today I celebrate your life and all that you have accomplished, you didn't die , for the love I have for you will keep your spirit living. I miss you xo

Date: 09/07/2012

By: Deaner

Subject: Always Remembering

Carl's Birthday was yesterday, ( Im still celebrating it as I have not gone to bed yet) , I just wanted to say that I am so very glad that I have all of these fond memories to look back on and tell people still of Carl and I, our childhood, growing up together, our adventures, awesome times we've had, and even those rediculous times about fighting over fish, I charish them all. I love and miss you mon Giffé.

Date: 07/12/2011

By: ♥ Girl20pretty ♥

Subject: ..

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Date: 20/12/2011

By: Sean

Subject: So sorry to hear

Hello Carl. I just stopped in to read up cause its been awhile. I sad to hear you lost your battle. You can now breath easy. It was nice to have met you and im still amazed at your journey you were able to embark on. You are now sailing on calm waters keeping an eye down on all us.

Date: 06/11/2011

By: your lil sis

Subject: one month

its been one month today since my brother has passed, i missed him more this last week then i did a month ago...closing my eyes at night, his face is all i see. I miss you dear brother i wish you were here with me.
xoxoxox

Date: 12/10/2011

By: Lévonie&M.T.(Matante)

Subject: Last service rendered

We were in Miscou from the special service re: Carl remains and we were tought my the simplicity and dginity and serenity in which this last service was done.
To you Christian and your sister you did the outmost a human can do for a brother and the memders of your family and you finally agreed to give your brither his last request and wish;his beach party departure from this world in a place that he loved and enjoyed so much.
We will remember Carl as a young gentlement with the heart of a millionnaire for this gentlement touched thousands of people which he did not even knew and succeeded to give them hope for a second life even if they were patients with CF.
Carl was a very courageous man and now an angel for those who are going through the ordeal of CF.
WE loved you and we pray that from heaven he will continue to guide the doctors and patients with CF.
Rest in peace and bless the members of your family from above and guige them in this life!

Lévonie Savoie & Marie -_Thérèse (Ma-Tante)(M.T.) Tracadie-Sheila,NB

Date: 12/10/2011

By: Chad Hachey

Subject: .

Sorry to hear you lost your fight man.
RIP dude

Date: 11/10/2011

By: Karen (Petrie) Doucet

Subject: Memories of a sweet boy

When I think of Carl, what I remember most was the sweet impish like smile that he shared with Christian and he could easily make you smile too.People ask me all the time, "don't you miss being a nurse?" and I always reply "no I don't, but I miss the kids terribly!" And Carl I definitely missed you (Christian,you too) God Bless

Date: 11/10/2011

By: The Tait Family

Subject: Forever strong

Hey Carl i sat here today and the most wonderful memory of you came to me. Remember the time when we were still neighbours in Shilo. Ian was away and we were sitting out back with the BB gun. You and Dean shooting yourselves with it then trying to shoot me. Member shooting Mike's wine glass and how mad he got and all we could do was laugh because he thought it was chris and not us!! LOL
The good days. We will always remember you as the determined, caring individual who saw everything in a good way. Take care friend you will always be missed and remembered!
To Family and friends of Carl. My deepest condolences go out to you. Forever be strong.
Ian and Bree Tait

Date: 09/10/2011

By: Joan Biseau

Subject: Memories

I sat here remembering my memories of Carl. The cute little boy who would come to my place and ask if George was home. This was a name that Carl gave to Ryan and I can't say I ever heard Carl call Ryan anything other than "George".

I remember him playing in the sand box out back with hot wheels cars. He could amuse himself for hours in this way until George came home from school to join him.

My memories of Carl from last summer was the day he was telling me about his adventures after his transplant. There was the familiar grin but the spark in his eyes was something new to see. You could see the excitement and hear it in his voice as he told of people he had met and the sights he had seen.

As I sat here today it occurred to me that Carl did more living in the past two years than some healthy people do in a life time. But of course Carl knew his time was limited and there would be no second chances for him. This young man had so much courage it just boggles my mind.

I will never forget your beautiful face, your contagious smile,that twinkle in your eyes and your voice. It is a shame Carl that the voice I will remember most was when you spoke to me in your Bubbles voice. For those of you who have never watched "Trailer Park Boys", Bubbles is one of the characters on the show, with this outlandish voice. Carl mimicked it very well and I would crack up every time he spoke to me in that voice.

To your sister and brother that have lost so much over the years: You have the same courage that Carl had. The love you have for each other will keep you strong through all of this. Theresa gave the world some pretty fantastic children. And one has gone home to her. So remember Carl is not alone. And I can bet if sail boats are in heaven, Carl is charting a course right now for him and your Mother to set sail together on.

Date: 08/10/2011

By: Sandra Furlotte

Subject: RIP

So sorry that your journey ended this soon. God bless you xo

Date: 08/10/2011

By: Rosh Narrandes

Subject: Going Beyond

Rest in peace dear Carl.
You have fulfilled your heart's dreams and desires when you received your new lungs. We have all learnt from you...never give up.
My condolences to your family.
Regards from your physiotherapist in Winnipeg.

Date: 07/10/2011

By: Sue Ellen Gallant

Subject: Gone To Soon

I sit here, wanting to say Hey Carl..haven't heard from you since July....but he won't get to read it. I was a pediatric nurse for 20 years. Carl & his brother Christian used to come in frequently for treatment for their cystic fibrosis. We always tried to keep them together in a semi-private room. Since I worked the night shift, I always tried my best to go in & read to them every night. We'd pile onto one bed, & I would read them a few bedtime stories, then say goodnight. I have such wonderful memories of these times. Suddenly they were no longer young children but teenagers, the kindest, most polite, fun teens to be around. They would hang out with us in the nurse's station, as we terrorized them with needles to start IV's on them. Gradually as teens do, they grew into young men. I left pediatrics & lost touch with Carl for awhile. I finally re-connected with his brother, got caught up on the "news". They lost their Mom at a young age to cancer, so it was Chris, Carl & Crystal against the world. What a force of strength behind these 3 siblings! Always positive, smiling, nothing seemed to get them down. Carl made "home" out west, and I would get Carl's news through his brother..who was almost my brother for about 5 years. I was so happy when I discovered Carl had had his lung transplant & recuperated so well. Then to read this blog & all his sailing he did...doing what he loved. He truly lived his life as if any hour could be his last. He taught me invaluable lessons about life. Even when he had to stop sailing & had to stay in Fredericton to be close to his Dr. he kept in touch with me through messages. I repeatedly told him if he needed anything at anytime to never hesutate to ask, I could be there in 3 hours. He answered me saying that Chris was coming down & bringing things he needed. The last message I got was in July. And here I was assuming he was doing okay. I opened my computer this morning to SHOCK....my beloved little Carl had left to continue his journey elsewhere. My thoughts, my prayers are with Carl's family, most especially my good buddy Christian and their sister Crystal. Carl, you will be sorely missed, never to be forgotten. You made a HUGE impact on all of "us" who were lucky enough to know you...Thank you Carl, for teaching me to keep smiling, to never give up & to just live life. Godspeed my sweet friend...sail the seven sea's with Mom at your side. I love you xoxo

Date: 07/10/2011

By: Jenna Vandal

Subject: A force to be reckoned with

I had the wonderful pleasure of working at Cabela's with Carl, we were both stuck in the camping department with a not so great boss that we would always joke about :). He made my days so enjoyable. He lived right beside me and we would walk to and from work together when we could. Id bring my dog over to his place sometimes and we would throw a ball around with his dogs and mine. Carl spoke very highly of his uncle, all the time. I only had the pleasure of meeting his uncle once, we all played played ball together in his backyard. I was shocked when Carl told me he had Cystic Fibrosis, you would never know considering his vigor and happy go lucky personality. Not only could he sail, but he could throw a ball like you wouldn't believe and ice skate with the best of them too! Id look forward to the shifts we had together because not only would he make me laugh every day, but we would indulge each other in stories about the wild, our hopes and dreams, nature..obviously a lot about camping :) He'd talk about his condition and what was notable was he was always positive and always full of hope. And the man loved being outside. I remember the excitement he shared with me when he told me Colin Angus had contacted him with his congratulations on his journey's. Colin Angus was an inspiration to us both. But Carl..you are far more of an inspiration to me then he ever will be, I wish I could have told you that. Ive never known anyone who looked death in the eye and told him to screw off, that you had some adventures to attend to. You were a force to be reckoned with Carl, you are in my heart always. My only regret is that I didn't spend enough time with you. My thoughts are going out to his uncle at this time and Carls very loving brother, sister, family and friends. May you rest in peace

Date: 07/10/2011

By: John

Subject: R.I.P

I went to high-school with Carl, he was in my video production class @ HPSS in Mission BC. He was in our group and was our camera man, we made a very funny horror movie, although we lost the movie, we never lost the memories. It was sad to see him leave BC but every-time he updated on facebook, he was off doing something cool and I was always very happy for him,

He was a fighter.
R.I.P Carl aka Guess

You will be missed, my condolences to the family and friends.

Date: 06/10/2011

By: you little sister

Subject: Forever within us

This morning Oct the 6, 2011, my very strong, wonderful brother passed on. He didnt go on without a fight. Here at home with his loved ones by his side, myself, our brother and partners...we held him close. It was a beautiful sunny morning, just as he would have wanted it.
I just want the world to know, and all of you who have followed his journey to never give up hope. Carl has done more in the past 2 years with his new lungs then some have done in a lifetime. He would have wanted for all people living with this disease to live everyday to the fullest, when you have a good day make it last and do all you can.
Last week Carl walked down to river set up his chair and started fly fishing, he did catch a trout, which made him quite happy. He knew it would make a good story for those who were visiting in his final days.
My brother Carl has touched many lives, more than i could even imagine, people from all across the country and far beyond. I hope that you all remember his funny ways, his stubborness, and his will to survive, to follow your dream regardless of the challanges which lie ahead. Carl did not get to finish his journey but his spirit lives on and he will now sail the seven seas.
Our mothers birthday is tomorrow, he must have needed a day to get ready before he met her. Im sure they will walk though together hand and hand. Now she is reunited with her dear son, her baby.
We love you Carl more than you will ever know. This is goodbye, but we shall meet again and when we do i will be looking forward to all the stories you will have to share than.
xoxoxox take care my darling ......i will miss you so much...


Date: 07/10/2011

By: Jenna Vandal

Subject: Re: Forever within us

Im very sorry for your loss. Thank you for letting us know that he died in the comfort of his home surrounded by loved ones, that brings some comfort. I miss him very much. Would you be able to share the details of the funeral when you get around to it? I would like to make it down for that if possible. Thank you.

Date: 06/10/2011

By: Tina - British Columbia

Subject: Proud of you

HI Carl, Tina here, I've pretty much known you all your life and just want to let you know that I and Im sure so many others are very proud of you for having the courage, dedication and the persistance to overcome and conquer whatever you had put your mind to... "The Little Engine that Could" comes to mind. Your story is certainly an Inspiration. I wish you nothing but the best and you are forever in my heart. Love you and miss you lots. SUPER DUPER BIG HUGS TO YOU. ox

Date: 10/09/2011

By: Sandra Furlotte

Subject: Great website!

Love your website! You're a great writer :) Heard about this through Marie-Therese. Hope you pull through this set back. I think about you and Christian often - you are both forever in my heart. xo

Date: 31/08/2011

By: Jenni Funk

Subject: anything and everything ..

heyy carl .. just checked out your website .. its amazing ! it really inspired me .. by the way say hi to our chicken for me ! <3 i love you <3

Date: 11/06/2011

By: your transplant coordinator

Subject: you

you are an inspiration to me and everyone I help along the path you have already taken

C

Date: 11/04/2011

By: Judy Whitty

Subject: Thanks!

Hi Carl,
I just wanted to let you know that I really enjoyed your presentation to the nursing students. It was very inspiring. I hope it always reminds me to look beyond the symptoms that may bring an individual to a hospital/clinic and see the person as a whole being. I suspect that your attitude and outlook was major factor in your recovery.
Best of luck to you,
Judy

ps, the website is fantastic!

Date: 17/03/2011

By: Cora

Subject: How About Now?

i'm writing on your wall now, hopefully you get this,, i looked at your pictures and this website made me tear up a little bit. Can't wait for you to get home!! so excited hehe Leah, Jeremy, You and I will have a whole week planned! :) oh Bruce says hi lol.

Byes xoxox

Date: 12/02/2011

By: Darci Leggatt

Subject: UNB Presentation

Hi Carl,

Again, thank you so much for coming to speak to the Nursing School. We as students can only learn so much about CF from textbooks and instructors; your story rely put the effect of CF into prospective.

Good Luck in Your Journey and Safe Sailing!!!!

Darci

Date: 11/02/2011

By: Ally Kenny

Subject: Presentation

Hi Carl,

Thank you for coming to UNB and sharing your story with us, Anne-Marie said great things about you and they are certainly true. Your story is amazing and you are such an inspiration. I am so glad I got to hear your story, I wont forget it and it will remind me to live life to the fullest just as you do. You are such a wonderful person with such a positive attitude, the world needs more people like you. I am excited to see where your adventures take you. Safe travels, have fun... I look forward to seeing where you end up next. Good luck with everything and thanks again for sharing your story.
Ally.

Date: 08/02/2011

By: Jill Savoie

Subject: Living Life:)

Hi Carl. Thanks for sharing your story with UNB Nursing Bathurst. You are a true inspiration for all people. Best of luck with your journey!!

Date: 08/02/2011

By: Andrea Paul

Subject: Presentation to Nursing Students

Hi Carl,
You are such an inspiration! Incredible presentation! Anne-Marie spoke so highly of you and without even meeting you- you gave off this wonderful presence as soon as you walked in the room! You are not only touching the lives of people with CF, but people without as well! You gave light on living your life to the fullest and being determined no matter how tough life gets. No one said life would be easy...but no one ever said life would get that tough- But you stuck through it all and look at you now! You are travelling the world, sharing your story and inspiring many people to appreciate the one life we are given and to live it to the fullest!

Keep up the wonderful work! I will be following your posts/adventures!
:)

Andrea Paul - 3rd year Nursing Student

Date: 08/02/2011

By: Carl

Subject: Re: Presentation

Thanks I really appreciate the feedback and i'm glad you enjoyed my presentation I hope to do it again in order to reach more people. Thanks very much and I look forward to hearing more from all of you.

Thanks.

Date: 07/02/2011

By: Daria Fallon

Subject: Presentation

Hi Carl,

Thank you for the wonderful presentation today at UNB Bathurst. Anne-Marie talks very highly of you, I couldn't wait to meet you and listen to your presentation. Have a wonderful journey and I will definitely be checking in on your sailing progess.

Good Luck and take care.

Date: 16/12/2010

By: Roland

Subject: Incredible!

Carl,

I had no idea that you were such an inspiration! Great videos! What's even better is that you are an awesome guy! Happy travels!

Roland

Date: 28/09/2010

By: Sean

Subject: What a life experince

Hello Carl, I came about your article in the Circle of friends magazine that came in the mail. A true insperation! I am currently on the waiting list for a double lung transplant and am 34. You were actually in my town (Penetanguishene) I hope you enjoyed the short stay here.
I enjoyed watching your videos and seeing some very nice scenery photograhy!

Sean

Date: 22/10/2010

By: Carl

Subject: Re: What a life experince

Hi Sean. Thanks for the comment I really enjoy reading them. I apologize for not yet having more pictures posted along with this years videos which will be much better than the ones on already. I am trying to get them done but currently I'm visiting my sister and don't really have access to internet. But do check back every once and a while I should get it up soon. I wish you the best of luck and hope I've helped inspire you to try something to help encourage others with CF.
Sincerely Carl.

Date: 25/09/2010

By: Teena

Subject: You Rock

Carl,

You are an inspiration!! You have a strength beyond the abilities of any man I have known!! I have seen you down and even then you still smiled!! I miss you lots and I hope we meet again soon!!

Teena
XOXOXOX

Date: 24/06/2010

By: Tim Vallillee

Subject: Pride

hi Carl,
We don't know each other but we share the CF Bond. I am a 42 year old living with CF as well. I am proud to see that you have overcome such a tremendous roadblock and are taking life straight on!!
I have always wanted to sail but there isn't much of a sailing community where I live here in Nova Scotia. (Annapoilis valley) I am 10 minutes from the sea but we are more of a fishing shore here.
I have enjoyed a lot of kayaking however and find it very benefiticial.
Keep up the good work and perhaps we'll hear about you on the Atlatic someday. If you need a crrew member, I'm ALL in!!
cheers from NS!!
Tim Vallillee

Date: 07/07/2010

By: Carl

Subject: Re: Pride

Thanks Tim
I was glad to hear from someone else with CF that means that people are starting to notice what I am trying to do. there is a possibility that we might be heading your way on a side venture after arriving in New Brunswick time permitting of course, I will certainly let you know.
Oh and out of Curiosity how did you come across my website.

Date: 04/06/2010

By: ta grande soeur carolline de miscou

Subject: fier de toi

tu est parti pour ton aventure, je te shouaite de la chance dans ton parcours j'espere que je pourrais te voir mis tu vien par chez nous. je pense beaucoup a vous et je suis fiere de se que tu a accomplis . ton site est beau bien pensé de faire ca au moin je peu s'avoir un peu ta vie. sois prudent bon voyage ! je t'aime et je te donne un gros bec plein de chance. je parlerais du voyage que leur oncle est on train de faire a jonathan et stephanie.

Date: 07/07/2010

By: Carl

Subject: Re: fier de toi

Merci beacoup.
jai hate de vous voir on dois arriver a Miscou dans moin que 2 semaines. ma date que je vais arriver va etre poster sur le site web mais que c un date prevu. Ben je vous aime et on c vois dans pas long. xoxo

Date: 27/05/2010

By: Lucie Guillemette

Subject: bonne navigation

Salut Carl,

Sébastien m'a fait parvenir le lien pour suivre ton parcours. Je suis très contente pour toi et vous souhaite un très beau voyage sans pépin. Les photos que vous prenez sont très belles et nous donne envie d`être là. Il semble que vous avez un équipier à quatre pattes qui semble aimer le voyage également . Donc prends de grande bouffer d'air pure car tu le mérites énormément. Bon vent !!!

Date: 26/05/2010

By: your lil sister

Subject: you are the best

i have never been so proud of someone to go this far in life considering all we have been through. From the moment you got your new set of lungs i knew mom was watching over you, your a wonderful big brother and you have helped guide me on the right path. I love you so much and hope that now you can live your life to the fullest and dont let anything stop you, because after all, nothing is impossible, look at you now. xoxox ill love you always

Date: 07/07/2010

By: Carl

Subject: Re: you are the best

Thanks Sis

I almost get tears to my eyes when I read your messages thanks so much for the encouragement and for being a great little sister and i hope to take you out for a sail when you get to New Brunswick this summer.
xoxox

Date: 23/05/2010

By: Gord and margie wilson

Subject: great show buddy

Just a note to tell you we are both happy for you,and proud of your quest. We hope this story will inspire people to be all they can be. Margie says to take care of yourself Carl. Say hi to what's his name,Paul.

Date: 15/05/2010

By: Tamara Ward

Subject: Hellooo!

Carl is sexy. I'll check this site out more later but right now my wee stinky boy is crying. Hope things are going great!

Date: 15/05/2010

By: Dean Ward (Deaner)

Subject: Wishing you fair weather and an awesome journey.

Good morning fella. Its 0848hrs on the 15th of May, Tamara is sleeping, i just put Callan back to sleep and now I finally got the chance to check out your website. Good job on the site and a fantastic story of inspiration if i've ever heard one. Like Dougy said, I also am one that takes everyday things for granted (however not nearly as much since my experience in Afghanistan) but live by what you had told me prior to your surgery, enjoy the little things and live life day to day. And that i do still. I am so grateful and proud to have you as a cousin and to be regarded as a brother. I am also thankful for the times that i was able to be there for you when times were tough, from taking the bus or train to Bathurst to visit with you in the hospital ( and spend the night on the floor like we were a couple of kids having a sleep over) to that crazy day you took me to the doctor to get my eye fixed and then i took you to Winnipeg for an overhaul ( well tamara drove because i could'nt see) . Up until they wheeled you through those big stainless steel doors, remember how positive i was about the whole thing? telling you not to worry because whomever was looking out over you had plans for you, and even still in the ICU and Step Down, when you were still worried whether you were going to make it or not, and at one point i remember saying " One day you will look back on this week and say that was one hell of a time." My point is for some reason even when it looked very bleak for you, i always knew that something was going to work out for, don't know if it was wishful thinking or something else. But there we were a few months ago, at around Christmas i believe, when we were looking back on your progress, looking back at those crazy couple of weeks, you did say " Man that was one hell of an experience." Its pretty cool if you think about it. And now here you are doing something that only most of us could ever dream of doing, living out one of your own dreams, setting it as a goal. Truely Inspirational my man, very inspirational indeed. So wherever you go and however high you climb, never forget the ones down below looking up at you, because they look up to you and care for you a great deal. Now with all that mooshy crap aside, i want to wish you and Uncle Paul good luck, a pleasent and wonderful adventure, and fair weather. A little rough stuff in there as well because i also would enjoy a bit of choppy water and high winds myself, just hoping that its moderate of course. Cheers fella.

Date: 13/05/2010

By: Sebastien

Subject: !!

Hey salut mon Carl,

Je suis pas mal content que tu réalises un de tes reves, oublie surtout pas de me lacher un coup de fil si tu accostes au port de Québec!!

Bon VOyage!!

Date: 06/05/2010

By: Kelley Vibert

Subject: Your journey

I read your story Carl, you are an amazing young man to come as far as you have. I hope others could be so lucky.May you have a safe journey, enjoy every moment of it! You need a new adventure in life to focus on. May you be an inspiration to others, that dreams do come true! ( God speed) Proud of you! xoxo

Date: 20/04/2010

By: Lori Vibert

Subject: Your Adventure

Hello Carl,

Great site... quite an inspiring story. It`s people like you that allow people to believe that life can and will be better if you believe enough and if you want it bad enough. It`s people like you Carl that give people hope and inspiration. And it is people like you that make others stop and say ``I CAN do this``. You are an amazing little man Carl (well you will always be a little man to me) - and I can`t tell you enough how proud I am of you, and what an honor it is to be your family. I wish you and Uncle Paul a safe and exciting journey home - God speed little one. I love you.

Date: 07/04/2010

By: Christina Dahl

Subject: Carl's Journy

Carl, your story is inspiring and I am greatful to know someone like you. I hope you have a great time on your trip and know that you will be missed. I will be looking forward to reading more about your trip and I hope you keep us all updated as I will be checking back. Your site looks great, keep it up, and keep your spirits high.
Have fun, be safe and continue to share your story with others!

Date: 01/04/2010

By: Edward Swart

Subject: Your Story

Hey Carl
Hope all is well
Wow Carl u have had quite a ride in life so far. Your spirit will carry you far,enjoy your trip and continue to live every minute like it was your last as u have been doing. Good luck on your trip, looking forward to hearing more about it on your return and as I check up on u on your blog.
Be Well

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